One of the truest ways to help those with rare diseases is to make people aware of them.

The more people who are aware, then more people can donate. The more people who donate then the more research that can be done, and the more research that is done then the better treatments that can be found and then the world be a slightly happier and better place.

I know that those who care for/have rare disease are already advocates for their disease. But even if you know someone who knows someone, you should be an advocate too!