If you have Ehlers-Danlos Syndrome (EDS), life can get a bit complicated.
Between doctors not knowing what you have to trying to figure out what treatments to use, it can be a whirlwind of overwhelming facts, figures, and scientific words.
Thankfully, there are some great organizations out there that are willing to help raise awareness about EDS. One of them is the ILC Canadian Ehlers-Danlos Syndrome Foundation.
In May 2016, they organized a Thunderclap Campaign, which is still going on today! It’s an easy way for you to donate money to the foundation to help them raise awareness and funds to further EDS research in Canada. Plus, with the way the world is so interconnected by the internet, that research can spread worldwide!
Not Canadian?
First off, I’m sorry, because you don’t know the magic of Tim Hortons.
Secondly, there’s probably an EDS Foundation in your country, too!
In the US, The Ehlers-Danlos Society is a very active organization. With a bunch of fundraising opportunities and ways to engage online, it’s a great way to get connected to your community.
In the UK, there is an organization called Ehlers-Danlos Support UK, which does the same thing. Plus, they have a front and center article called “Why the Zebra?” which I think a lot of people can relate to. It’s like “Why Spoons?” but specifically for EDS.
So, if you’re looking for a way to get more involved in the EDS community, or your want to learn more about your condition, or you want to know what treatments are out there, these foundations are a great place to start.
You never know what wonderful thing is just a click away.
