Happy Friday!
We have some great news for the short bowel syndrome community. We also have info on a PBS doc you won’t want to miss.
One of our contributors has detailed the financial toll a rare disease takes, and another one talks about the value of support groups when diagnosed with a rare disease.
So sit back and enjoy this week’s Editor’s Choice.
New Drug for Short Bowel Syndrome Gets Orphan Designation
Exciting things happening for the world of short bowel syndrome drug development.
Read more here.
PBS Documentary “The Gene Doctors” Brings Rare Treatments to the Public Eye
Need an interesting watch?
Get the details here.
Rare Disease Families Face Financial Challenges Few Understand
PW Contributor Denise talks about the monetary hit families take when dealing with rare disease.
Read more here.
The Value of a Support Group
PW Contributor Tom details how a support group helps him through dystonia.
Check out his story here.
