Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
CLICK HERE TO SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Daily Archives: November 3, 2018

  1. Home>
  2. 2018>
  3. November>
  4. 3
Critical Medication for Fabry Disease Gets Added to Australia’s Life Saving Drugs Program
PixelAnarchy / Pixabay

Critical Medication for Fabry Disease Gets Added to Australia’s Life Saving Drugs Program

  • Post author:James Moore
  • Post published:November 3, 2018
  • Post category:Fabry Disease

According to a story from The Sydney Morning Herald, the Australian government recently announced that it will be adding Galafold, a drug used to treat rare Fabry disease, to the…

Continue Reading Critical Medication for Fabry Disease Gets Added to Australia’s Life Saving Drugs Program
Promising Early Results From Research into Pancreatic Cancer
PublicDomainPictures / Pixabay

Promising Early Results From Research into Pancreatic Cancer

  • Post author:Anna Hewitt
  • Post published:November 3, 2018
  • Post category:Pancreatic Cancer

A study funded by the Lustgarten Foundation, the largest private funder of pancreatic cancer research in America, has shown promising results. The scientists are hopeful that their work could lead…

Continue Reading Promising Early Results From Research into Pancreatic Cancer
Could the Appendix Play a Role in Parkinson’s Disease
qimono / Pixabay

Could the Appendix Play a Role in Parkinson’s Disease

  • Post author:James Moore
  • Post published:November 3, 2018
  • Post category:Parkinson's Disease

According to a story from ScienceNews, a recent study has revealed an unusual connection between the appendix and Parkinson's disease. This research found that people who received an appendectomy (surgery…

Continue Reading Could the Appendix Play a Role in Parkinson’s Disease
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
CLICK HERE TO SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info