Making the Most out of Myositis Awareness Month!

May is Myositis Awareness Month!

Myositis is the inflammation or swelling of the muscles. There are two primary kinds of myositis:

  • Polymyositis, which causes muscle weakness, usually in the muscles closest to the trunk of the body
  • Dermatomyositis, which causes muscle weakness, plus a skin rash

The following are symptoms that are characteristic of myositis:

  • Trouble rising from a chair
  • Difficulty climbing stairs or lifting arms
  • Tiredness after standing or walking
  • Trouble swallowing or breathing
  • Muscle pain and soreness that does not resolve after a few weeks
  • Known elevations in muscle enzymes by blood tests

To learn more about myositis, click here!

How to Help

The Myositis Association (TMA) — an organization devoted to improving the lives of those affected by myositis, funding innovative research, and increasing myositis awareness and advocacy — has shared some ways the rare patient community can help spread awareness about myositis, during its awareness month.

See below the many ways we can help spread the word about this rare condition.

Myositis Awareness Month Press Releases

Keep up to date with TMA press releases!

Share Your Story

Take this opportunity to talk about myositis to your friends, family, colleagues, and neighbors. Share the impact of myositis and the easy ways to offer support.

Click here for myositis patient stories for inspiration.

Start a Fundraiser

TMA makes it easy to run your own campaign in order to raise funds for myositis awareness and support.

Click here to learn how you can start your own fundraiser! 

Contribute to TMA’s Fundraiser

Do you love what The Myositis Association does? Consider making a donation to help advance their mission and ongoing education efforts.

It’s never too early to think about those tax deductions!

Post on Social Media

Use your social network to spread the word about myositis.

Click here to download social media graphics to help spread the (visual) word!

Become a Member

Join the TMA as a member to help you stay up-to-date and share myositis news, research, clinical trials, and more all year long.

Plus, you’ll have access to TMA’s support groups to build your own myositis community.

Meet the Myositis Community at TMA’s Conference

The 2019 Annual Patient Conference will address the diversity of needs and challenges within the myositis community.

See the event details and register!

Stay up to Date with TMA

TMA will be posting updates and spreading awareness about myositis on their blog all month long.

And there’s even more resources you can use to spread awareness! Click here to learn more!

So whether it’s an active plunge into fundraising events or just tweeting some infographics to your followers – every drip in the bucket contributes to fill up the cup of hope.


How are you supporting Myositis Awareness Month? Share your stories, thoughts, and hopes with the Patient Worthy community!

 

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