Happy Thursday, Patient Worthy Friends!
This week we’re highlighting two stories on families who went on a diagnostic odyssey to understand their children’s rare diseases. Additionally, we have some big news on research pertaining to artifical nerve cells. Last but not least, we have wrap up from the iPain summit.
Have a great December and check out this week’s editor’s choice!
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XLA: This Father Helped Identify the Disease That Killed His First-Born Son—and Saved His Youngest in the Process
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When a family lost their son to a rare disease, they were faced with a mystery. What had caused his symptoms and how could they protect their younger son?[/one_half_last] [one_half]
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Artifical Nerve Cells Created in Groundbreaking Research To Cure Some Diseases
This research could have big implications for a variety of diseases, from Alzheimer’s to heart failure.
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Ryder’s Story: The Road to a Asparagine Synthetase Deficiency Disorder Diagnosis
It took years for Ryder to receive her rare diagnosis, but now, at age six, she’s running 5ks and seizure free. [/one_half_last] [one_half]
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#iPainSummit2019: An Overview of Complex Regional Pain Syndrome
Couldn’t make the iPain summit this year? Here are some of our highlights.
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