Myeloproliferative neoplasm (MPN) International Awareness Day is on September 10th. This year, there will be a live streaming event to help bring awareness to this condition, instead of an in-person gathering. We are all adjusting to a new normal during the COVID-19 pandemic. This virtual event is a safe, but still effective, way to build up the community of MPN patients and bring awareness to these rare conditions.
This event is being put on by MPN Austria. They hope to draw a worldwide audience, as they know MPN doesn’t discriminate geographically. There are patients, caregivers, doctors, and researchers impacted by MPN all over the world.
As a part of this live stream there will be separate Zoom roundtable discussions for essential thromboycthemia (ET), primary myelofibrosis (PMF), and polycythemia vera (PV). To participate in these discussions, you must register in advance.
Goals of the Event
This event aims to bring awareness, and as a result, increased research for these rare conditions. Further, it helps to connect the vast community affected by MPN.
The organizers explain how this sense of community is even more important than normal during this time of social distancing. Face to face interactions are being cancelled left and right in order to protect against COVID-19. Connecting with others has been made difficult, and modifying events like these instead of cancelling them is a great way to keep community.
In addition, MPN Austria hopes to-
- Provide a better understanding of MPN
- Provide information to patients on the latest MPN research
- Give an opportunity for PV, MF, and ET patients to meet with haemato-oncologists specializing in their disease
- Bring MPN to the attention of relevant authorities and the media
- Ensure patients don’t feel alone in what they’re facing
Who Can Attend?
MPN Austria invites all MPN patients, those who have experienced symptoms but don’t yet have an official diagnosis, families, caregivers, influencers, media, opinion leaders, government officials, politicians, and health care professionals to this event.
The goal is to spread awareness of this condition, and therefore all are welcome!
You can read more about this upcoming event here.