We are excited to announce that Patient Worthy’s award-winning podcast “Wait, How Do You Spell That? A Rare Disease Podcast” is back in action with a new episode. Colby and Nia Maya sit down with Jasmine Souers, who is the President and CEO of the Missing Pink Breast Cancer Alliance. This conversation zeroes in on a lot of ‘rare’ subjects that aren’t covered in mainstream sources, such as the experience of people of color with breast cancer, treatment differences, and individual genotypes.

You can expect regular episode releases to return for the foreseeable future.

Interested in learning more about the Missing Pink Breast Cancer Alliance? Click here to visit their website.

They have also just launched a new publication called More Life Magazine. Click here to learn more.

Check out the episode below:

About Breast Cancer

Breast cancer itself is not a rare disease, but it is rare for breast cancer to metastasize, or spread to other areas of the body. This is because breast cancer is generally detected fairly early on in most cases and treatments are effective enough for survival rates to be quite high, at least in the developed world. In the US, for example, the five-year survival rate is 85 percent. Risk factors include obesity, alcohol consumption, tobacco smoking, radiation, exposure to certain chemicals, certain genetic variants (such as BRCA mutations), and hormonal birth control. Breast cancer can spread to a variety of sites, such as bones, lungs, brain, liver, and nearby lymph nodes. Symptoms vary depending on the site of the metastases. To learn more about breast cancer, click here. 

Chronic conditions and rare diseases don’t discriminate. Patient Worthy and its partners are interested in amplifying the voices of those from all identities and backgrounds. If you have a journey to share, reach out to learn more about how your voice can help spread awareness and inspire individuals from all walks of life.