Something Beautiful Remains: Remembering Mauricio Saravia
In an article by the Fibrous Dysplasia Foundation, the brief and wondrous life of Mauricio Saravia is remembered and celebrated on the advent of
Fibrous Dysplasia Foundation
The FD/MAS Alliance
The FD/MAS Alliance, previously The Fibrous Dysplasia Foundation (FDF), is a community-led nonprofit that fights back against fibrous dysplasia, McCune-Albright syndrome (FD/MAS), and related rare bone diseases. FD/MAS Alliance serves people affected by FD/MAS through programs of research, education, and advocacy. FD/MAS Alliance will create a better future for people living with FD/MAS by sponsoring efforts to find an effective treatment, improving education on how to manage FD/MAS, and building a strong network of patients, families, researchers and clinicians.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Resources & Support
Patient Worthy Posts on Fibrous Dysplasia
Recent Study Connects MAS With Digestive System Diseases
According to a story from Clinical Advisor, a recent study has found a link between McCune-Albright syndrome and gastrointestinal disease. In fact, the authors of
Join the FD/MAS 2022 Awareness Celebration
The International Consortium of FD/MAS invites you to its Film Screening and Community Discussion on the 24th of February at 7:30 pm EST. The event
