According to a story from Clinical Advisor, a recent study has found a link between McCune-Albright syndrome and gastrointestinal disease. In fact, the authors of
Fibrous Dysplasia Foundation (FDF)
The Fibrous Dysplasia Foundation (FDF) is a community-led nonprofit that fights back against fibrous dysplasia, McCune-Albright syndrome (FD/MAS), and related rare bone diseases. FDF serves people affected by FD/MAS through programs of research, education, and advocacy. FDF will create a better future for people living with FD/MAS by sponsoring efforts to find an effective treatment, improving education on how to manage FD/MAS, and building a strong network of patients, families, researchers and clinicians.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Connect With The Fibrous Dysplasia Foundation
Patient Worthy Posts on Fibrous Dysplasia
In an article by the Fibrous Dysplasia Foundation, the brief and wondrous life of Mauricio Saravia is remembered and celebrated on the advent of