Something Beautiful Remains: Remembering Mauricio Saravia
In an article by the Fibrous Dysplasia Foundation, the brief and wondrous life of Mauricio Saravia is remembered and celebrated on the advent of
- Rare Disease News
Fibrous Dysplasia Foundation
The FD/MAS Alliance
The FD/MAS Alliance, previously The Fibrous Dysplasia Foundation (FDF), is a community-led nonprofit that fights back against fibrous dysplasia, McCune-Albright syndrome (FD/MAS), and related rare bone diseases. FD/MAS Alliance serves people affected by FD/MAS through programs of research, education, and advocacy. FD/MAS Alliance will create a better future for people living with FD/MAS by sponsoring efforts to find an effective treatment, improving education on how to manage FD/MAS, and building a strong network of patients, families, researchers and clinicians.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Resources & Support
Patient Worthy Posts on Fibrous Dysplasia
Recent Study Connects MAS With Digestive System Diseases
According to a story from Clinical Advisor, a recent study has found a link between McCune-Albright syndrome and gastrointestinal disease. In fact, the authors of
Join the FD/MAS 2022 Awareness Celebration
The International Consortium of FD/MAS invites you to its Film Screening and Community Discussion on the 24th of February at 7:30 pm EST. The event
