Whichever holiday you celebrate can be difficult when you’re living with a chronic illness. We hope that you feel well enough to enjoy your favorite part of the season and that you’re surrounded with well wishes and loved ones!
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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!
