Meghan “Meg” Bayer is a third year MSW Candidate at Winthrop University. For the past 11 years, she has been battling a one-in-a-million neuroautoimmune disease, Pediatric-Onset Stiff Person Syndrome, that causes severe muscle spasms and joint contractures. She is a #RAREis scholarship recipient, a Young Adult Rare Representative, and she has spoken at events hosted by the Rare Disease Legislative Advocates, the Center for Disability Resources at the University of South Carolina School of Medicine, ABLE SC, and the South Carolina Youth Leadership Forum. After she began using a wheelchair for mobility, Meg fell in love with taekwondo, earning her 3rd degree black belt and ascending to the top of the podium at the ATA World Championships as World Champion nine times.
Written by Meghan Bayer Stiff Person Syndrome Spectrum Disorder (SPSD) is an acquired, progressive, neurological spectrum disorder with features of an autoimmune disease that is believed to affect one to…
Continue ReadingEmbracing the “Tin Man Disease”: International Stiff Person Syndrome Awareness Day 2023 on March 15
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