Angelman Syndrome Archives - Page 3 of 3

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Photographer Captures Daily Life of Rare Families with Dignity and Grace

Post author:Patient Worthy Contributor
Post published:November 13, 2017
Post category:Angelman Syndrome Rare Disease Tay-Sachs Disease

Rare disease began shaping acclaimed photographer, Karen Haberberg's family years before she was born. Her parents had given birth to her older brother, who was diagnosed with Tay-Sachs. Tay-Sachs is a…

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Photographer Captures Daily Life of Rare Families with Dignity and Grace

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