Patient Worthy's award-winning podcast "Wait, How Do You Spell That? A Rare Disease Podcast" is back with a new episode. This week, Colby is sitting down with Ashley Point, a…
Dear fellow rare community, It is with great joy that I share my journey of self-discovery and self-love with you. It took me a while to fully embrace my uniqueness…
My name is Becky Tilley. I live in the UK, am married, and my wonderful husband Carl and I have three children: Isabella (age four), Joshua (age two), and Avary…
Hi, my name is Becky. I am age 38 from the UK and am a proud wife to my wonderful husband Carl and mother to my three beautiful children:…
Continued From Part One Written by Becky Tilley Finally I found a role that I was appreciated in, at least by the kids. I wasn't very welcome by the girls…
Written by Becky Tilley My name is Becky Tilley and I am a rare woman, mama, writer and advocate. Also am proud wife to my husband Carl and mother to…
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