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Myositis

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Making the Most out of Myositis Awareness Month!

Making the Most out of Myositis Awareness Month!

  • Post author:Jean Martell
  • Post published:May 16, 2019
  • Post category:Myositis

May is Myositis Awareness Month! Myositis is the inflammation or swelling of the muscles. There are two primary kinds of myositis: Polymyositis, which causes muscle weakness, usually in the muscles closest…

Continue Reading Making the Most out of Myositis Awareness Month!
Scientists Discover How Flesh Eating Bacteria Thrive Inside Our Bodies
source: pixabay.com

Scientists Discover How Flesh Eating Bacteria Thrive Inside Our Bodies

  • Post author:Octavia Walker
  • Post published:February 6, 2019
  • Post category:Myositis

  Flesh eating bacteria is an infection that can have dire consequences. A Streptococcus, the most common of the flesh eating diseases, causes death in one third of all people…

Continue Reading Scientists Discover How Flesh Eating Bacteria Thrive Inside Our Bodies
Positive Results Announced from Phase 2b Trial for Neuromyelitis Optica

Positive Results Announced from Phase 2b Trial for Neuromyelitis Optica

  • Post author:Trudy Horsting
  • Post published:January 7, 2019
  • Post category:Myositis/Neuromyelitis Optica

Neuromyelitis optica (NMO), or Devic's disease is a rare autoimmune condition which causes inflammation in the optic nerve and/or spinal cord. The condition affects 5 in every 1,000,000 people and…

Continue Reading Positive Results Announced from Phase 2b Trial for Neuromyelitis Optica
One Physician Facing Two Diseases of Her Own: A Hodgkin Lymphoma Story

One Physician Facing Two Diseases of Her Own: A Hodgkin Lymphoma Story

  • Post author:Patient Worthy Contributor
  • Post published:August 23, 2018
  • Post category:Dermatomyositis/Hodgkin Lymphoma/Myositis

According to a story reported by The New York Times, on Christmas Day, a physician and mom of two became too weak and fatigued to do much of anything. Her…

Continue Reading One Physician Facing Two Diseases of Her Own: A Hodgkin Lymphoma Story
Younger Sister Runs Marathon to Raise Support for Brother’s Dermatomyositis
Source: Pixabay

Younger Sister Runs Marathon to Raise Support for Brother’s Dermatomyositis

  • Post author:Samuel Sachs
  • Post published:May 24, 2018
  • Post category:Dermatomyositis/Myositis

Andrew Macnab received a diagnosis of dermatomyositis last year. His sister Helen Keith is preparing for her first marathon in order to help Andrew. The money Helen raises will go…

Continue Reading Younger Sister Runs Marathon to Raise Support for Brother’s Dermatomyositis
The Myositis Association (TMA) to Host 2017 Annual Patient Conference

The Myositis Association (TMA) to Host 2017 Annual Patient Conference

  • Post author:Patient Worthy Contributor
  • Post published:August 29, 2017
  • Post category:Myositis/Rare Disease

The Myositis Association (TMA) supports the myositis community, helps to fund myositis research and increases myositis awareness. Registration is currently OPEN for their 2017 Annual Patient Conference. Details below: Who: The…

Continue Reading The Myositis Association (TMA) to Host 2017 Annual Patient Conference
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You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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