Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope Share
SHARE YOUR STORY!
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW

Progeria

  1. Home>
  2. Progeria>
  3. Page 2
Artificial Blood Vessels Let Scientists See Rare Disease in Action
Source: Pixabay

Artificial Blood Vessels Let Scientists See Rare Disease in Action

  • Post author:Patient Worthy Contributor
  • Post published:November 28, 2017
  • Post category:Progeria/Rare Disease

Progeria is an incredibly rare genetic condition, where a random mutation causes a person to age rapidly. Progeria patients are essentially young people in the body of someone much older.…

Continue Reading Artificial Blood Vessels Let Scientists See Rare Disease in Action
The Children’s Book by a Girl Who Aged Too Fast
pixabay.com

The Children’s Book by a Girl Who Aged Too Fast

  • Post author:Patient Worthy Contributor
  • Post published:November 9, 2017
  • Post category:Progeria

Meghan Waldron, a 16-year-old girl in Massachusetts, disregards comments about her size, “Sure I’m small, but so are poison dart frogs!” Meghan runs track and country, plays violin and cello,…

Continue Reading The Children’s Book by a Girl Who Aged Too Fast
Personalized Therapeutic Testing for the Ultra-Rare is Coming
Source: pixabay.com

Personalized Therapeutic Testing for the Ultra-Rare is Coming

  • Post author:Sarah Lau
  • Post published:August 21, 2017
  • Post category:Progeria/Rare Disease

In breaking news for the progeria community, biomedical engineers have just succeeded in growing miniature human blood vessels that mimic progeria, the ultra-rare genetic condition characterized by premature aging in…

Continue Reading Personalized Therapeutic Testing for the Ultra-Rare is Coming
The Inspirational Face of Progeria – and Happiness
Source: Pixabay

The Inspirational Face of Progeria – and Happiness

  • Post author:Sarah Lau
  • Post published:July 21, 2017
  • Post category:Progeria/Rare Disease

In my opinion, Sam Berns is the face of progeria. I first saw his inspirational Ted Talk, “My philosophy for a happy life,” a couple of years ago, but then…

Continue Reading The Inspirational Face of Progeria – and Happiness
This Documentary Proves that There’s Nothing a Mom Can’t Do
Source: https://pixabay.com/en/mother-son-walking-sea-seacoast-1651340/

This Documentary Proves that There’s Nothing a Mom Can’t Do

  • Post author:Sarah Lau
  • Post published:July 11, 2017
  • Post category:Progeria/Rare Disease

As a writer for Patient Worthy, I often focus on successful clinical trials and recent FDA approvals for drugs. Quite frankly, I think that this focus has blinded me to…

Continue Reading This Documentary Proves that There’s Nothing a Mom Can’t Do
The Progeria Research Foundation is Working Harder Than Ever
Source: https://pixabay.com/en/people-scientist-microscope-white-219985/

The Progeria Research Foundation is Working Harder Than Ever

  • Post author:Sarah Lau
  • Post published:July 10, 2017
  • Post category:Progeria/Rare Disease

Earlier last month, the second clinical trial for progeria was announced as completed. The trial was again funded by The Progeria Research Foundation, spearheaded by Drs. Scott Berns and Leslie…

Continue Reading The Progeria Research Foundation is Working Harder Than Ever
  • Go to the previous page
  • 1
  • 2

Featured


Picture of Family


Metastatic Breast Cancer: Navigating Grief


Picture of Ralph Family walking


Rethinking What It Means to Live With Acromegaly


Illustration of mentor program members


The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

SHARE YOUR STORY!
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info