El Washington Post reporta una apasionante historia de una familia golpeada por un diagnóstico de enfermedades raras, pero también una historia alentadora de una comunidad global que se reúne para…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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