La Cumbre HF 2019 fue un evento productivo y conmovedor que reunió a pacientes e investigadores de todo el mundo. Katherine A. Wilemon, fundadora y directora ejecutiva de la Fundación…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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