De acuerdo a un artículo publicado en la revista Orphanet Journal de Enfermedades Raras, Un taller realizado el 23 de Junio del 2019 en Orlando, FL, se centró en un…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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