Desde Abril del 2019, he estado buscando activamente adultos (18+) que estén dispuestos a compartir públicamente sus historias sobre sus vidas con enfermedades raras y crónicas. Creo que es esencial…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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