Como se informó originalmente en Medscape; muchos pacientes con enfermedades raras conocen la frustración de no tener medicamentos o tratamientos disponibles para su enfermedad. El 95% de los pacientes con…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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