Durante gran parte de la historia de la humanidad, muchos trastornos genéticos fueron aceptados como incurables, y su aparición rápida acabaría con la vida de los pacientes antes de que…
Nosotroscreemos que lospacientes de enfermedadesraras son personas, no undiagnóstico. A través de la educación, conciencia, y unpoco de humor – ayudamospacientes, suscuidadores y simpatizantesbrindándolesnoticias e historiasrelevantesya menudo inspiradoras.
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