A rare diagnosis changes everything.  You weren’t given a playbook on how to cope, how to take that next step, and you certainly weren’t handed a blueprint on how to build an advocacy organization or successfully bring a therapy to market. The good news is that rare disease advocates are some of the most inspiring, innovative activists on the planet, and Global Genes works to bring the community together to share best practices, create important introductions, and help catalyze powerful collaborations.

This is why Global Genes would like to invite you to join The Fourth Annual RARE Patient Advocacy Summit on September 24 – 25, 2015 in Huntington Beach, California! The goal of this year’s RARE Patient Advocacy Summit is for patients, caregivers, and advocates to walk away equipped with actionable next steps whether you have been recently diagnosed, are building a disease community, thinking about funding early research, actively engaged in developing a treatment, or have been advocating in rare disease for decades.