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The CCHS Network’s 5th International CCHS Conference
"The Future is NOW—Priorities, Partnerships, and Patient Voice" The conference will be an event for health professionals and CCHS patient community to come together in collaboration, communication, and support. Attendees will learn about the latest in CCHS research and treatments. Registration Members: FREE Professionals/Non-members: $200 With dinner (one person/two people): $250/$300
Find out more »The Pitt-Hopkins Research Foundation’s Family Conference & Scientific Symposium
2018 Family Conference & Scientific Symposium This conference will be an opportunity for Pitts-Hopkins syndrome patients and medical researchers to come together, collaborate, and network. Patients and their families will have the opportunity to learn the latest in treatment and research. Registration Parents, caregivers (single day): $40 Adult lunch (per day): $10 Child lunch, 0-18 […]
Find out more »Choroideremia Research Foundation’s 2018 Conference
2018 CRF Conference The conference will be a chance for families impacted by choroideremia to share with one another and build community. Conferences are held every two years and are opportunities to learn about the latest research and treatments for choroideremia. Registration Early registration (until 4/15): $100/$25/FREE (Adult/Teens/Children 12 and under) Regular registration: $125/$50/FREE (Adults/Teens/Children […]
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