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The CCHS Network’s 5th International CCHS Conference
$200
"The Future is NOW—Priorities, Partnerships, and Patient Voice" The conference will be an event for health professionals and CCHS patient community to come together in collaboration, communication, and support. Attendees will learn about the latest in CCHS research and treatments. Registration Members: FREE Professionals/Non-members: $200 With dinner (one person/two people): $250/$300
Find out more »The Pitt-Hopkins Research Foundation’s Family Conference & Scientific Symposium
$40
2018 Family Conference & Scientific Symposium This conference will be an opportunity for Pitts-Hopkins syndrome patients and medical researchers to come together, collaborate, and network. Patients and their families will have the opportunity to learn the latest in treatment and research. Registration Parents, caregivers (single day): $40 Adult lunch (per day): $10 Child lunch, 0-18 […]
Find out more »Choroideremia Research Foundation’s 2018 Conference
$100
2018 CRF Conference The conference will be a chance for families impacted by choroideremia to share with one another and build community. Conferences are held every two years and are opportunities to learn about the latest research and treatments for choroideremia. Registration Early registration (until 4/15): $100/$25/FREE (Adult/Teens/Children 12 and under) Regular registration: $125/$50/FREE (Adults/Teens/Children […]
Find out more »Alternating Hemiplegia of Childhood Foundation’s Family Meeting 2018
$50
Family Meeting 2018 This is an opportunity for families affected by alternating hemiplegia of childhood to come together and realize that they are not alone. Families will meet up to share stories, struggles, and advice. Registration Family of 5 or less: $130/$180 (before 5/15/after 5/15) Couple: $80/$130 (before 5/15/after 5/15) Individuals: $50/$75 (before 5/15/after 5/15) […]
Find out more »Dysautonomia International’s 6th Annual Conference
$275
"Together We Rock" This conference will consist of educational seminars, patient advocacy training, and inspiring public speakers. This conference will focus on autonomic disorders such as postural orthostatic tachycardia syndrome. Patients, researchers, caregivers, industry reps, and nonprofit leaders are invited to attend the event. Registration Before May 11th, 2018: $275 After May 11: $325
Find out more »PSC Partners Seeking a Cure’s 2018 Annual Conference
$220
14th Annual Conference The conference will be an opportunity for caregivers and patients to share and collaborate with one another. Topics will include the latest in primary sclerosing cholangitis news, research, and treatments. No one under age 13 is permitted to attend the conference. Registration Early bird (until 4/8): $200 Regular (4/9-5/28): $220 Late (5/29-6/9): […]
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