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The Oley Foundation’s Annual Conference
The 2018 Oley Consumer/Clinician Conference This conference will be an opportunity for patients with short bowel syndrome or other conditions that must use intravenous nutrition and feeding tubes to learn more about these therapies. In addition, participants will be able to consult with care providers and clinicians in order to get their questions answered. Registration […]
Find out more »International Federation of Psoriasis Association’s World Psoriasis & Psoriatic Arthritis Conference
6,590SEK
The 5th Annual World Psoriasis & Psoriatric Arthritis Conference This event will be an opportunity help increase the global awareness around psoriasis and psoriatric arthritis. Participants will share and learn about the latest clinical and research developments. This conference will also emphasize the patient perspective and encourage new ideas for research. Registration Healthcare professionals: 6,590 […]
Find out more »The SATB2 Gene Foundation’s 2018 International Conference
The 2nd Annual International Conference This conference is open to SATB2-associated syndrome patients, their families, caregivers, and medical experts. The event will be an opportunity to share the latest news in research and treatment for SATB2-associated syndrome. Registration closed for this event on March 31st, 2018.
Find out more »Parent Project Muscular Dystrophy’s Annual Conference
$150
This is the largest international conference dedicated to Duchenne muscular dystrophy in the world. Families affected by Duchenne muscular dystrophy will gather to share stories, network, and build community. In addition, attendees will get to learn about the latest research and treatment news. Registration Family rates: $150/$200/$250 (Early/Regular/Late) Professional/Industry rates Industry sponsor reps: $550/$600/$660 (Early/Regular/Late) […]
Find out more »The CdLS Foundation’s National Family Conference
$390
Biennial Conference This conference will be a chance for families affected by Cornelia de Lange syndrome to interact one on one with medical experts, build community with each other, and learn how to manage the syndrome on a daily basis and face the challenges ahead. Registration Adults: $390 Caregivers: $260 Children: $205/FREE (age 3-17/age 2 […]
Find out more »The United Mitochondrial Disease Foundation’s Mitochondrial Medicine 2018
$115
This symposium will be an opportunity for medical researchers from around the world to present the latest data, research, and findings related to mitochondrial disease. The event will also include content for patients and their families to learn more about mitochondrial disease. Registration (patient/family program) Early Bird/After May 31st Individual registration: $115/$230 Family registration: $225/$450 […]
Find out more »The Hydrocephalus Association’s National Conference
$380
The 15th National Conference on Hydrocephalus: HA Connect This conference will be an opportunity for medical professionals, caregivers, patients, and their families to converge and learn about the latest development in hydrocephalus research and treatment. In addition, participants will learn about what it takes to live and manage hydrocephalus on a daily basis. Registration $380/$660/$940/$1220 […]
Find out more »The MSUD Family Support Group’s 19th Biennial Group Symposium
$25
The MSUD Biennial Symposium This event will feature presentations of the latest maple syrup urine disease research and treatments. Registration - $25 (Max= $75/family)
Find out more »PMD Family Support Group’s Annual Conference
The 2018 Annual Conference This conference will feature a program that focuses on the latest research and information for Pelizaeus-Merzbacher disease. Discounted $119/night rate for participants.
Find out more »Kids Get Arthritis Too’s 2018 JA Conference
$150
A patient and family conference for patients and families affected by juvenile arthritis. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more information about facing juvenile idiopathic arthritis on a daily basis, build community, share your stories, and learn the latest in treatment and disease research. Registration Early Bird (until 4/30) […]
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