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The National PKU Alliance’s 2018 NPKUA Conference
$249
"Advance the Dream" This conference will be a chance for PKU patients and their families to learn the latest about PKU research and treatment from disease experts. The event will also be a great opportunity for PKU families to share stories, build community, and network with each other. Registration Members: $299/$149/$99 (Families/individuals or extra family […]
Find out more »Little People of America’s National Conference
LPA National Conference Orlando 2018 This event will be a great opportunity for those affected by dwarfism and diastrophic dysplasia to build community and have fun with one another. This will also be an event that will provide an uplifting, educational program that will allow participants to learn more. For registration info, call 714-368-3689.
Find out more »The Sotos Syndrome Support Association’s 2018 Conference
$135
"Learn, Network, and Bond!" This event will be an opportunity for Sotos syndrome patients and families to come together for a weekend of support, community building, and education. Additionally, Sotos syndrome researchers will be in attendance to present the latest in research and treatment, and medical professionals will be available for personal consultations with […]
Find out more »The National Urea Cycle Disorders Foundation’s Annual Family Conference
$65
The 2019 NUCDF Annual Family Conference This year's conference will be a unique opportunity for researchers, patients, families, and medical experts to come together and spread support and knowledge about urea cycle disorders. Participants will have a chance to learn the latest in research and treatment for urea cycle disorders and get informed about the […]
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