- Rare Disease News
Events Search and Views Navigation
All Day
Little People of America’s National Conference
LPA National Conference Orlando 2018 This event will be a great opportunity for those affected by dwarfism and diastrophic dysplasia to build community and have fun with one another. This will also be an event that will provide an uplifting, educational program that will allow participants to learn more. For registration info, call 714-368-3689.
Find out more »The National Fragile X Foundation’s 16th International Conference
$525
The 16th NFXF International Fragile X Conference This event will cover all fragile X disorders and is the largest fragile X event in the world. Caregivers, families, patients, and medical professionals are all encouraged to attend. Families will be able to network, support, and share with one another as well as consult directly with fragile […]
Find out more »The Williams Syndrome Association’s National Convention
$400
The 2018 National Convention At this event, Williams syndrome patients and their families will have a chance to learn the latest in research, treatment, and diagnostics from widely reputed Williams syndrome experts. Registration Standard (Until 5/15): $200/$250/$400/$550 (one adult 1 day/two adults 1 day/one adult/two adults) Late registration (5/16 and after): $225/$300/$450/$600 Patient/youth programs (Standard): […]
Find out more »The Marfan Foundation Hosts 2018 Annual Conference – Santa Clara, California
The conference will take place is Santa Clara, California July 12th-15th. To register, please sign-up for emails by visiting the website below.
Find out more »National Organization for Albinism and Hypopigmentation’s NOAH Conference 2018
$185
#NOAHCon2018 The event will be an opportunity for members of the albinism community to come together, share stories, and build community. Participants will be able to learn the latest about albinism research. Registration Early deadline: 4/16/18 $110/$185/$300 (children 5 and under/ages 5 and up/professionals) Regular deadline: 5/14/18 $135/$240/$375
Find out more »The MAGIC Foundation’s 24th Annual Convention
$195
The 24th Annual Convention This conference is available to patients and their families that are affected by septo-optic dysplasia and other disorders that impact a child's growth and development. It will serve as an opportunity to meet other members of the septo-optic dysplasia patient community and learn more from experts about the latest information about […]
Find out more »The Marfan Foundation’s Annual Conference
$375
This conference is available to children and adults affected by Marfan syndrome and their families. It will serve as an opportunity to meet other members of the Marfan syndrome patient community and learn more from experts about the latest information about this syndrome. Participants will also learn about best practices for managing the condition […]
Find out more »1:00 pm
The Aicardi Syndrome Foundation’s 2018 Family Conference
The 2018 Aicardi Syndrome Family Conference At this event, attendees will be able to meet other families that have been affected by Aicardi syndrome. In addition, the conference will be an opportunity to learn the latest in Aicardi syndrome research and treatment. Registration for this conference is completely free, but attendees must be prepared to […]
Find out more »