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Events for July 18, 2018

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The Barth Syndrome Foundation’s Scientific, Medical, and Family Conference

July 16, 2018 - July 21, 2018
Hilton Clearwater Beach Hotel, 400 MANDALAY AVENUE
Clearwater, FL United States + Google Map

THE 9TH INTERNATIONAL SCIENTIFIC, MEDICAL & FAMILY CONFERENCE "Power Up!" This event will be a convergence of health providers, researchers, and industry leadership to present the latest research and treatments in the field of Barth syndrome to the patient community. The event will also be an opportunity for Barth syndrome patients and their relatives to […]

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SOFT’s SOFT Medical & Family Conference

July 18, 2018 - July 22, 2018
Hotel Red Lion, 3321 S 72nd St
Omaha, NE United States + Google Map
$135

The 32nd Annual Medical & Family Conference This conference will be a chance for the trisomy 18 patient community to come together, to share stories, spread support, and build community. In addition, participants will learn the latest in trisomy 18 research and treatments, and will have the opportunity to learn new strategies for managing trisomy […]

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Hunter’s Hope’s 2018 Family Symposium

July 18, 2018 - July 22, 2018
Holiday Valley Resort, 6557 Holiday Valley Road
Ellicottville, United States + Google Map

Freedom & Hope This event will be a chance for patients and families affected by Krabbe disease and other leukodystrophies to come together for to build community, spread hope, and share stories in an environment free from judgement. The family conference will be preceded by a invitation-only medical symposium that will present that latest research […]

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