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American Syringomyelia & Chiari Alliance Project’s Great Expectations Annual Conference
$175
ASAP Chiari & Syringomyelia Conference This event will be an opportunity for chiari and syringomyelia patients and their families to network with one another. Participants will also be able to learn about the latest in chiari and syringomyelia treatment and research. Registration $490/$175/$95 Families/adults/children Single day: $70 Banquet: $75
Find out more »The Tuberous Sclerosis Alliance’s World TSC Conference
$249
2018 World TSC Conference This event will be an opportunity for tuberous sclerosis patients and their families to network with one another. Participants will also be able to learn about the latest in tuberous sclerosis treatment and research. Registration Early bird (before 6/1) $249/$199/$99 (Full conference/two days/one day) Regular (after 6/1) $350/$275/$145
Find out more »The Scleroderma Foundation’s National Patient Education Conference
$250
The 2018 Scleroderma Foundation National Patient Education Conference The event will be an opportunity for scleroderma patients and their families to come together for a time of solidarity, community building, and networking. In addition, patients will be able to learn the latest about scleroderma research and treatments, as well as managing the disease on a […]
Find out more »The Scleroderma Foundation’s National Patient Education Conference
$250
The 2018 Scleroderma Foundation National Patient Education Conference The event will be an opportunity for systemic scleroderma patients and their families to come together for a time of solidarity, community building, and networking. In addition, patients will be able to learn the latest about systemic scleroderma research and treatments, as well as managing the disease […]
Find out more »Ongoing
The Five P Minus Society’s 2018 5P Society Conference
$200
The 5P Minus Society Conference of Champions The conference will an opportunity for families affected by cri du chat syndrome (5P minus) to engage and learn from one another. This meeting of the patient community will be a great opportunity to share stories and challenges. In addition, attendees will have the opportunity to learn that […]
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