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Events for March 28, 2019

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The Cystinosis Research Foundation’s Day of Hope Family Conference

March 28 - March 30
Fashion Island Hotel, 690 Newport Center Dr.
Newport Beach, CA United States
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The 2019 Cystinosis Research Foundation Day of Hope Family Conference This conference for cystinosis patients and their families is a unique opportunity for attendees to learn the latest in cystinosis research and other topics related to the disease. Hear directly from CRF funded researchers and build community with fellow cystinosis patients. Registration for the event […]

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6:00 pm

Birmingham, AL Live Event: CIDP Patient Speaker Program

March 28 @ 6:00 pm - 8:00 pm
Gianmarco’s Restaurant, 721 Broadway Street
Birmingham, AL 35209 United States
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Speakers: Estelle Helms Laura Rohe RN, BSN, AE-C To register for this live event, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This […]

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6:30 pm

Albany, NY Live Event: CIDP Patient Speaker Program

March 28 @ 6:30 pm - 8:30 pm
Provence, 1475 Western Avenue
Albany, NY 12203 United States
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Speakers: William Blouin, MSN, ARNP, CPNP Appolos Laurore To register for this live event, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This […]

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