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The Cystinosis Research Foundation’s Day of Hope Family Conference
The 2019 Cystinosis Research Foundation Day of Hope Family Conference This conference for cystinosis patients and their families is a unique opportunity for attendees to learn the latest in cystinosis research and other topics related to the disease. Hear directly from CRF funded researchers and build community with fellow cystinosis patients. Registration for the event […]
Find out more »The National Ataxia Foundation’s Annual Ataxia Conference
$150
The 62nd NAF Annual Ataxia Conference "Ataxia: A Treatable Disease" Are you affected by ataxia? Then don't miss out on the largest ataxia themed event in the world where patients learn, share and network with each other, and even have a little fun while doing it. Participants will leave this conference with the resources and […]
Find out more »The Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, PNH Conference
The 2019 Living With Aplastic Anemia, MDS, PNH Patient and Family Conference This unique conference, which will be held in Albuquerque, New Mexico is an exceptional opportunity for patients with aplastic anemia, PNH, or MDS to learn about their diseases from world renowned disease experts, network and socialize with other patients, and find inspiration and hope […]
Find out more »8:00 am
The Aplastic Anemia and MDS International Foundation’s Patient and Family Conference
The 2019 Patient and Family Conference Albuquerque, NM This patient conference is open to all patients with aplastic anemia, myelodysplastic syndromes, and related diseases such as various leukemias and paroxysmal nocturnal hemoglobinuria. This event is a great opportunity to hear about the latest in treatment and research for aplastic anemia, myelodysplastic syndromes, and related diseases. […]
Find out more »9:00 am
The Myelodysplastic Syndromes Foundation’s Patient & Family/Caregiver Forum
The MDS Patient & Family/Caregiver Forum at Jacksonville, Florida Have you been affected by myelodysplastic syndromes (MDS)? Perhaps you have just been diagnosed or have been facing your disease for years. Either way, the this event is an excellent opportunity for myelodysplastic syndromes patients and their families to learn the latest in disease research, treatments, […]
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