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Events for June 22, 2019

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The Alagille Syndrome Alliance’s International Symposium

June 20 - June 23
Kingsgate Hotel and Conference Center, 151 Goodman Drive
Cincinnati, OH 45219 United States
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$250

The International Symposium 2019 "Connecting The Pieces" Cincinnati, Ohio This will be the 8th International Symposium hosted by the Alagille Syndrome Alliance. This meeting is the largest gathering in the world of Alagille syndrome patients, their families, researchers, and medical professionals. Don't miss this opportunity for building community with other Alagille syndrome patients and learning […]

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The Immune Deficiency Foundation’s National Conference

June 20 - June 22
Gaylord National Resort and Convention Center, 201 Waterfront Street
National Harbor, MD 20745 United States
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$190

The 2019 IDF National Conference National Harbor, Maryland Are you a patient with primary immunodeficiency or common variable immune deficiency? Well don’t miss this important patient event. At this conference, immunodeficiency patients and their families will have the opportunity to learn the latest about clinical care and treatment options for various forms of immune deficiency […]

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The APS Type 1 Foundation’s International APS Type 1 Symposium

June 20 - June 23
Gaylord National Resort and Convention Center, 201 Waterfront Street
National Harbor, MD 20745 United States
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$190

The 3rd International APS Type 1 Symposium National Harbor, Maryland in partnership with the Immune Deficiency Foundation's IDF National Conference. Are you a autoimmune polyendocrine syndrome (APS) type 1 patient? Well don’t miss this important patient event. At this conference, APS type 1 patients and their families will have the opportunity to learn the latest […]

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The Tuberous Sclerosis Alliance’s International Tuberous Sclerosis Complex Research Conference

June 20 - June 22
Chelsea Hotel Toronto, 33 Gerrard St W
Toronto, Ontario M5G 1Z4 Canada
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$645

The 2019 International Tuberous Sclerosis Complex Research Conference "Changing the Course of TSC" Toronto, Ontario Are you a tuberous sclerosis patient or medical expert? Well don’t miss this important research event. At this conference, tuberous sclerosis experts from around the world will present information about the latest research initiatives. For registration information, click here.

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The Spastic Paraplegia Foundation’s 2019 Spastic Paraplegia Annual Conference

June 21 - June 22
Hilton San Antonio Airport, 611 NW Loop 410
San Antonio, TX 78216 United States
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$250

The 2019 Spastic Paraplegia Annual Conference Patients, their families, medical professionals, and caregivers are invited to attend this conference. Participants will have the opportunity to network with one another, build community, and learn the latest research and treatment news for hereditary spastic paraparesis and primary lateral sclerosis. For registration information, click here.

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The National Organization for Rare Disorders’ Living Rare, Living Stronger NORD Patient & Family Forum

June 21 - June 23
Hilton Americas Houston, 1600 Lamar Street
Houston, TX 77010 United States
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$125

The 2019 Living Rare, Living Stronger NORD Patient & Family Forum featuring the Rare Impact Awards 2019 This rare disease patient forum brings together health professionals, physicians, patients, and medical researchers to learn from the latest scientific findings and form community together. This event will also include the Rare Impact Awards, an event that is […]

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The Oley Foundation’s Oley Foundation and University of Illinois at Chicago Conference

June 21 - June 24
Lincolnshire Marriott Resort, Ten Marriott Drive
Lincolnshire, IL 60069 United States
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The 2019 Oley Foundation and University of Illinois at Chicago Annual Conference The Essentials of Home Parenteral and Enteral Nutrition: What Consumers and Clinicians Need to Know Are you a rare disease patient that requires tube feeding or intravenous nutrition? Well this is a great event for you to attend. Learn the basics about conducting […]

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The Alpha-1 Foundation’s Alpha-1 National Conference

June 21 - June 23
Omni Orland Resort at ChampionsGate, 1500 Masters Boulevard
ChampionsGate, FL 33896 United States
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$180

The 28th Annual Alpha-1 National Conference Orlando, Florida Are you an alpha-1 antitrypsin deficiency patient? Well don’t miss this important patient event. At this conference, alpha-1 antitrypsin deficiency patients and their families will have the opportunity to learn the latest about clinical care and treatment options for alpha-1 antitrypsin deficiency as well as hear about […]

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PSC Partners Seeking a Cure’s 2019 Annual Conference

June 21 - June 23
Mayo Civic Center, 30 Civic Center Dr SE
Rochester, MN 55904 United States
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$270

The 15th Annual Conference 2019 Rochester, Minnesota Are you a primary sclerosing cholangitis patient? Well don’t miss this important patient event. At this conference, primary sclerosing cholangitis patients and their families will have the opportunity to learn the latest about clinical care and treatment options for primary sclerosing cholangitis as well as hear about the […]

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Cure JM Foundation’s Annual National Family Conference

June 21 - June 23
The Hyatt Lodge at McDonald’s Campus, 2815 Jorie Blvd
Oak Brook, IL 60523 United States
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$100

The 13th Annual National Family Conference featuring the Walk Strong to Cure JM Chicago, Illinois Are you a juvenile dermatomyositis patient? Well don’t miss this important patient event. At this conference, juvenile dermatomyositis patients and their families will have the opportunity to learn the latest about clinical care and treatment options for juvenile dermatomyositis as […]

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PURA Syndrome Foundation’s Annual PURA Syndrome Conference

June 22 - June 23
Boston Marriott Quincy, 1000 Marriott Drive
Quincy, MA 02169 United States
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$100

4th Annual PURA Syndrome Conference The conference will be an opportunity for patient families and medical experts to meet and learn about the latest in PURA syndrome research. Additionally, families will be able to consult with health professionals, build communities, and exchange ideas. For registration information, click here.

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The National Organization for Rare Disorders 2019 Patient & Family Forum

June 22
Space Center Houston, 1601 E NASA Parkway
Houston, TX 77058 United States
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The 2019 Living Rare, Living Stronger NORD Patient & Family Forum Featuring The 2019 Rare Impact Awards As published on NORD's website, the 2019 Living Rare, Living Stronger NORD Patient & Family Forum will be held on June 21-23 of this year! It will bring the rare community together with physicians, medical students, and allied […]

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The Cutaneous Lymphoma Foundation’s Patient Conference

June 22 - June 23
Westdrift Manhattan Beach, 1400 Parkview Ave
Manhattan Beach, CA 90266 United States
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The 2019 2-Day Patient Conference Manhattan Beach, California Are you a cutaneous T-cell lymphoma patient? Well don’t miss this important patient event. At this conference, cutaneous T-cell lymphoma patients and their families will have the opportunity to learn the latest about clinical care and treatment options for cutaneous T-cell lymphoma as well as hear about […]

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10:00 am

The Foundation for Sarcoidosis Research’s Oklahoma City Patient Education Conference

June 22 @ 10:00 am - 4:00 pm

The Oklahoma City Patient Education Conference 2019 Are you a sarcoidosis patient? Well don't miss this important patient event. At this conference, sarcoidosis patients and their families will have the opportunity to learn the latest about clinical care and treatment options for sarcoidosis as well as hear about the latest research initiatives supported by the […]

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