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The Alagille Syndrome Alliance’s International Symposium
$250
The International Symposium 2019 "Connecting The Pieces" Cincinnati, Ohio This will be the 8th International Symposium hosted by the Alagille Syndrome Alliance. This meeting is the largest gathering in the world of Alagille syndrome patients, their families, researchers, and medical professionals. Don't miss this opportunity for building community with other Alagille syndrome patients and learning […]
Find out more »The Immune Deficiency Foundation’s National Conference
$190
The 2019 IDF National Conference National Harbor, Maryland Are you a patient with primary immunodeficiency or common variable immune deficiency? Well don’t miss this important patient event. At this conference, immunodeficiency patients and their families will have the opportunity to learn the latest about clinical care and treatment options for various forms of immune deficiency […]
Find out more »The APS Type 1 Foundation’s International APS Type 1 Symposium
$190
The 3rd International APS Type 1 Symposium National Harbor, Maryland in partnership with the Immune Deficiency Foundation's IDF National Conference. Are you a autoimmune polyendocrine syndrome (APS) type 1 patient? Well don’t miss this important patient event. At this conference, APS type 1 patients and their families will have the opportunity to learn the latest […]
Find out more »The Tuberous Sclerosis Alliance’s International Tuberous Sclerosis Complex Research Conference
$645
The 2019 International Tuberous Sclerosis Complex Research Conference "Changing the Course of TSC" Toronto, Ontario Are you a tuberous sclerosis patient or medical expert? Well don’t miss this important research event. At this conference, tuberous sclerosis experts from around the world will present information about the latest research initiatives. For registration information, click here.
Find out more »The Spastic Paraplegia Foundation’s 2019 Spastic Paraplegia Annual Conference
$250
The 2019 Spastic Paraplegia Annual Conference Patients, their families, medical professionals, and caregivers are invited to attend this conference. Participants will have the opportunity to network with one another, build community, and learn the latest research and treatment news for hereditary spastic paraparesis and primary lateral sclerosis. For registration information, click here.
Find out more »The National Organization for Rare Disorders’ Living Rare, Living Stronger NORD Patient & Family Forum
$125
The 2019 Living Rare, Living Stronger NORD Patient & Family Forum featuring the Rare Impact Awards 2019 This rare disease patient forum brings together health professionals, physicians, patients, and medical researchers to learn from the latest scientific findings and form community together. This event will also include the Rare Impact Awards, an event that is […]
Find out more »The Oley Foundation’s Oley Foundation and University of Illinois at Chicago Conference
The 2019 Oley Foundation and University of Illinois at Chicago Annual Conference The Essentials of Home Parenteral and Enteral Nutrition: What Consumers and Clinicians Need to Know Are you a rare disease patient that requires tube feeding or intravenous nutrition? Well this is a great event for you to attend. Learn the basics about conducting […]
Find out more »The Alpha-1 Foundation’s Alpha-1 National Conference
$180
The 28th Annual Alpha-1 National Conference Orlando, Florida Are you an alpha-1 antitrypsin deficiency patient? Well don’t miss this important patient event. At this conference, alpha-1 antitrypsin deficiency patients and their families will have the opportunity to learn the latest about clinical care and treatment options for alpha-1 antitrypsin deficiency as well as hear about […]
Find out more »PSC Partners Seeking a Cure’s 2019 Annual Conference
$270
The 15th Annual Conference 2019 Rochester, Minnesota Are you a primary sclerosing cholangitis patient? Well don’t miss this important patient event. At this conference, primary sclerosing cholangitis patients and their families will have the opportunity to learn the latest about clinical care and treatment options for primary sclerosing cholangitis as well as hear about the […]
Find out more »Cure JM Foundation’s Annual National Family Conference
$100
The 13th Annual National Family Conference featuring the Walk Strong to Cure JM Chicago, Illinois Are you a juvenile dermatomyositis patient? Well don’t miss this important patient event. At this conference, juvenile dermatomyositis patients and their families will have the opportunity to learn the latest about clinical care and treatment options for juvenile dermatomyositis as […]
Find out more »PURA Syndrome Foundation’s Annual PURA Syndrome Conference
$100
4th Annual PURA Syndrome Conference The conference will be an opportunity for patient families and medical experts to meet and learn about the latest in PURA syndrome research. Additionally, families will be able to consult with health professionals, build communities, and exchange ideas. For registration information, click here.
Find out more »The National Organization for Rare Disorders 2019 Patient & Family Forum
The 2019 Living Rare, Living Stronger NORD Patient & Family Forum Featuring The 2019 Rare Impact Awards As published on NORD's website, the 2019 Living Rare, Living Stronger NORD Patient & Family Forum will be held on June 21-23 of this year! It will bring the rare community together with physicians, medical students, and allied […]
Find out more »The Cutaneous Lymphoma Foundation’s Patient Conference
The 2019 2-Day Patient Conference Manhattan Beach, California Are you a cutaneous T-cell lymphoma patient? Well don’t miss this important patient event. At this conference, cutaneous T-cell lymphoma patients and their families will have the opportunity to learn the latest about clinical care and treatment options for cutaneous T-cell lymphoma as well as hear about […]
Find out more »10:00 am
The Foundation for Sarcoidosis Research’s Oklahoma City Patient Education Conference
The Oklahoma City Patient Education Conference 2019 Are you a sarcoidosis patient? Well don't miss this important patient event. At this conference, sarcoidosis patients and their families will have the opportunity to learn the latest about clinical care and treatment options for sarcoidosis as well as hear about the latest research initiatives supported by the […]
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