- Rare Disease News
Events Search and Views Navigation
All Day
The United Mitochondrial Disease Foundation’s Mitochondrial Medicine 2019
$115
Mitochondrial Medicine 2019 Mitochondrial Medicine 2019 is the annual symposium hosted by the United Mitochondrial Disease Foundation, an event that has been widely regarded by patient families, researchers, and physicians as the premiere annual event dedicated to mitochondrial disease research and treatment. While this event is focused on scientific research, patients and their families are encouraged to […]
Find out more »Parent Project Muscular Dystrophy’s 2019 Annual Conference
$200
The 2019 Annual Conference This will be the 25th year of PPMD's annual conference, which is geared towards Duchenne muscular dystrophy patients, their families, researchers, caregivers, and physicians. Don't miss this opportunity to join a closely knit community of patients and learn critical information about the latest research, therapies, and care methods. Sessions will be […]
Find out more »The Huntington’s Disease Society of America’s Annual Convention
$199
HDSA 34 Boston: The 34th Annual HDSA Convention The 34th annual convention is tailored for Huntington's disease patients and their families. Join the HDSA for three days of educational sessions, community building and sharing, and just plain fun. Attendees will have the opportunity to learn about the latest in Huntington's disease research and treatment and […]
Find out more »Association for X and Y Variations’ AXYS Family Conference
$325
The 2019 AXYS Family Conference Atlanta, Georgia Are you or one of your family members affected by Trisomy X or other X and Y chromosome variations? Then this conference is for you. Don't miss this opportunity to hear from world-renowned researchers and experts about X and Y chromosome conditions like Trisomy X. Learn practical information […]
Find out more »Cure SMA’s Annual SMA Conference
$215
The 2019 Annual SMA Conference Anaheim, California Cure SMA's annual conference is the largest conference in world focused on spinal muscular atrophy. The event includes and event for both patient families and researchers, allowing for a unique environment of collaboration and comradery. Don't miss this opportunity to learn the latest about spinal muscular atrophy, build […]
Find out more »Little People of America’s 2019 National Conference
$220
The 2019 LPA 62nd Annual National Conference San Francisco, California The Little People of America's annual conference is the ultimate experience for people affected by dwarfism and diastrophic dysplasia. This event will be focused on community, education, comradery, and fun. Don't miss out on the conference's signature events, such as the LPA's Got Talent Show, […]
Find out more »10:00 am
The Hypersomnia Foundation’s Educational Meeting
$25
The HF Educational Meeting Seattle, Oregon The conference will be an opportunity for patient families and medical experts to meet and learn about the latest in idiopathic research. Additionally, families will be able to consult with health professionals, build communities, and exchange ideas. For registration information, click here.
Find out more »
