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The United Mitochondrial Disease Foundation’s Mitochondrial Medicine 2019

June 26, 2019 - June 29, 2019
Hilton Alexandria Mark Center, 5000 Seminary Road
Alexandria, VA 22311 United States
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Mitochondrial Medicine 2019 Mitochondrial Medicine 2019 is the annual symposium hosted by the United Mitochondrial Disease Foundation, an event that has been widely regarded by patient families, researchers, and physicians as the premiere annual event dedicated to mitochondrial disease research and treatment. While this event is focused on scientific research, patients and their families are encouraged to […]

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Parent Project Muscular Dystrophy’s 2019 Annual Conference

June 26, 2019 - June 30, 2019
Renaissance Orlando at SeaWorld, 6677 Sea Harbor Drive
Orlando, FL United States
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The 2019 Annual Conference This will be the 25th year of PPMD's annual conference, which is geared towards Duchenne muscular dystrophy patients, their families, researchers, caregivers, and physicians. Don't miss this opportunity to join a closely knit community of patients and learn critical information about the latest research, therapies, and care methods. Sessions will be […]

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The Huntington’s Disease Society of America’s Annual Convention

June 27, 2019 - June 29, 2019
Boston Marriott Copley Place, 110 Huntington Avenue
Boston, MA 02115 United States
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HDSA 34 Boston: The 34th Annual HDSA Convention The 34th annual convention is tailored for Huntington's disease patients and their families. Join the HDSA for three days of educational sessions, community building and sharing, and just plain fun. Attendees will have the opportunity to learn about the latest in Huntington's disease research and treatment and […]

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Association for X and Y Variations’ AXYS Family Conference

June 28, 2019 - June 30, 2019
Emory Conference Center and Hotel, 1615 Clifton Road
Atlanta, GA United States
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The 2019 AXYS Family Conference Atlanta, Georgia Are you or one of your family members affected by Trisomy X or other X and Y chromosome variations? Then this conference is for you. Don't miss this opportunity to hear from world-renowned researchers and experts about X and Y chromosome conditions like Trisomy X. Learn practical information […]

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Cure SMA’s Annual SMA Conference

June 28, 2019 - July 1, 2019
Disneyland Hotel, 1150 Magic Way
Anaheim, CA 92802 United States
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The 2019 Annual SMA Conference Anaheim, California Cure SMA's annual conference is the largest conference in world focused on spinal muscular atrophy. The event includes and event for both patient families and researchers, allowing for a unique environment of collaboration and comradery. Don't miss this opportunity to learn the latest about spinal muscular atrophy, build […]

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Little People of America’s 2019 National Conference

June 28, 2019 - July 5, 2019
San Francisco Marriot Marquis, 780 Mission Street
San Francisco, CA 94103 United States
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The 2019 LPA 62nd Annual National Conference San Francisco, California The Little People of America's annual conference is the ultimate experience for people affected by dwarfism and diastrophic dysplasia. This event will be focused on community, education, comradery, and fun. Don't miss out on the conference's signature events, such as the LPA's Got Talent Show, […]

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10:00 am

The Hypersomnia Foundation’s Educational Meeting

June 29, 2019 @ 10:00 am - 3:00 pm
Seattle Airport Marriott, 3201 South 176th Street
Seattle, OR 98188 United States
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The HF Educational Meeting Seattle, Oregon The conference will be an opportunity for patient families and medical experts to meet and learn about the latest in idiopathic research. Additionally, families will be able to consult with health professionals, build communities, and exchange ideas. For registration information, click here.  

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