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Events for September 20, 2019

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Global Genes’ RARE Patient Advocacy Summit

September 18, 2019 - September 20, 2019
Sheraton San Diego Hotel & Marina, 1380 Harbor Island Drive
San Diego, CA 92101 United States
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The Global Genes RARE Patient Advocacy Summit This conference will be a convergence of a variety of rare disease stakeholders, such as rare disease patients, world renowned experts, and caregivers. Attendees will leave this event with the skills necessary to be effective rare disease advocates as well as the latest knowledge about the latest in […]

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The Chinese Organization for Rare Disorders’ 8th China Rare Disease Summit

September 20, 2019 - September 22, 2019
The Coli Hotel, Dayun Rd, Long Gang Zhong Xin Cheng, Longgang Qu, Shenzhen Shi, Guangdong Sheng
Shenzen, Guangdong 518172 China
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The Eighth China Rare Disease Summit The China Rare Disease Summit is the largest rare disease focused event held in China. A variety of rare disease stakeholders from across the country will converge for an event of research presentations and collaboration. For registration information, click here.

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8:00 am

The Cure GM1 Foundation’s GM1 Family Meeting

September 20, 2019 @ 8:00 am - September 21, 2019 @ 5:00 pm
Holiday Inn Bayside, 4875 N Harbor Dr
San Diego, CA 92106 United States
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The GM1 Family Meeting September 20th, 2019 San Diego, CA This GM1 Family Meeting is intended for all GM1 patients and their families. Don't miss this opportunity to learn about the latest research, advocate with fellow patients, and build community. The event will also be taking place near the same time and place as the […]

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