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Events for March 28, 2020

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8:30 am

The Everylife Foundation for Rare Diseases and Global Genes’ RARE on the Road Rare Disease Leadership Tour

March 28 @ 8:30 am - 3:30 pm
Marbles Kids Museum, Zanzibar A 201 E Hargett St
Raleigh, NC 27601 United States + Google Map

RARE on the Road: a Rare Disease Leadership Tour May 30th, 2020 Raleigh, NC The Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates, patients, and caregivers. Learn how to activate your local rare disease community. The tour is a unique opportunity to connect with other rare disease advocates […]

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6:30 pm

CureDuchenne Cares Sessions: Boston, MA

March 28 @ 6:30 pm - 8:30 pm
Morton’s The Steakhouse, 2 Seaport Ln.
Boston, MA 02210 United States + Google Map

CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families March 28th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as caregivers. These casual, two hour events can help inform patients about the latest in standards of care and other important information related to Duchenne muscular […]

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