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Global Genes’ RARE Patient Advocacy Summit
The Global Genes RARE Patient Advocacy Summit September 21-23, 2020 This conference will be a convergence of a variety of rare disease stakeholders, such as rare disease patients, world renowned experts, and caregivers. Attendees will leave this event with the skills necessary to be effective rare disease advocates as well as the latest knowledge about […]
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Boehringer Ingelheim’s More Than Scleroderma Educational Webinar
More Than Scleroderma: A Live Educational Event September 23, 2020 at 3:00 PM ET Join us for a webinar about scleroderma Because scleroderma is so rare, it can be hard to find understandable or comprehensive information, and difficult to know what it all means. For example, did you know that most people with scleroderma will […]
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