Events for December 9, 2020

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7:00 pm

Managing Your PNH Live Webinar- Sponsored by Alexion Pharmaceuticals Inc.

December 9, 2020 @ 7:00 pm - 8:30 pm

Managing Your PNH Connect. Learn. Take Action. Live Webinar Wednesday, December 9, 2020 Alexion invites patients, families, and caregivers living with paroxysmal nocturnal hemoglobinuria (PNH) to an educational program for the PNH community. Please join us as we bring together patients and families living with PNH. Patient and Caregiver Ambassadors will share their personal stories […]

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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Events for December 9, 2020

Events Search and Views Navigation

Events Search

Event Views Navigation

7:00 pm

Managing Your PNH Live Webinar- Sponsored by Alexion Pharmaceuticals Inc.

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

“Shades of Psoriasis”: Plaque Psoriasis and Sharing Your Story

Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes

We Need Equity and Diversity Within Rare Disease Research

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics - Part 1

Bridging the Diversity Gap in Healthcare

Congratulations to the 2023 Recipients of the Diversity in Lupus Research Awards!

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

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