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Events for February 17, 2021

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12:00 pm

The FH Foundation’s FH Global Summit: New Frontiers of FH Care

February 17, 2021 @ 12:00 pm - 1:30 pm

The FH Global Summit Session 5: New Frontiers of FH Care February 17, 2021 This session will focus on the future of FH care. Can CRISPR gene editing technology help treat cardiovascular illness? Is it possible to look beyond the known genes associated with FH to determine a personal risk assessment? Click here to sign […]

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1:00 pm

Cystic Fibrosis Research, Inc.’s California Rare Disease Advisory Council Virtual Coalition Meeting

February 17, 2021 @ 1:00 pm - 2:30 pm

California Rare Disease Advisory Council Virtual Coalition Meeting February 17, 2021 Legislation to create a California Rare Disease Advisory Council (RDAC) will be introduced by State Senator Susan Eggman in mid-February.  If you would like to review the proposed bill language, please email Stacie Reveles at [email protected].  Our next coalition meeting will take place in conjunction […]

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