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Cystic Fibrosis Research, Inc.’s California Rare Disease Advisory Council Virtual Coalition Meeting

February 17 @ 1:00 pm - 2:30 pm

California Rare Disease Advisory Council Virtual Coalition Meeting

February 17, 2021

Legislation to create a California Rare Disease Advisory Council (RDAC) will be introduced by State Senator Susan Eggman in mid-February. 
 
If you would like to review the proposed bill language, please email Stacie Reveles at sreveles@cfri.org. 

Our next coalition meeting will take place in conjunction with California’s Rare Action Network Rare Disease Day Virtual Event.

Click here to sign up and learn more.

Details

Date:
February 17
Time:
1:00 pm - 2:30 pm
Event Category:
Event Tags:
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Website:
https://www.congressweb.com/signup/?id=7357409F-5056-9235-1487610416F9291D

Organizer

Cystic Fibrosis Research Inc.
Phone:
8552374669
Email:
cfri@cfri.org
Website:
http://www.cfri.org/home.shtml