- Rare Disease News
Events Search and Views Navigation
March 2019
The Acromegaly Community and Pituitary Society’s Joint Annual Conference
The 16th International Pituitary Congress and The 2019 National Acromegaly Conference This year, the Pituitary Society and the Acromegaly Community have, on the basis of shared interest and common goals, agreed to hold their respective conferences side by side. This dual conference will further increase the opportunities for medical experts, endocrinologists, patients, and caregivers to learn from one another and increase educational awareness. Acromegaly patients and treatment specialists should not miss this unique opportunity. Stay tuned to this link to…
Find out more »The Acromegaly Community’s National Acromegaly Conference
The 2019 National Acromegaly Conference This acromegaly event is the ideal opportunity for patients, physicians, caregivers, and families to come together to learn more about acromegaly and the latest research and treatment options related to this condition. Don't miss this opportunity to become part of the #acrofamily. This event will be held alongside the Pituitary Society Conference. Registration for this event is FREE.
Find out more »September 2019
Vancouver Acromegaly Support Group’s National Acromegaly Conference Canada
The National Acromegaly Conference Canada September 27th-29th, 2019 "Knowledge is Power, for a Better Quality of Life" This event is geared towards the Canadian acromegaly patient community. Don't miss this event if you are an acromegaly patient, family member, caregiver, or researcher. The conference will feature a variety of sessions geared towards various subjects surrounding acromegaly, such as treatments and the latest research from renowned scientific experts. This event is FREE for acromegaly patients and their spouses. Register for this…
Find out more »April 2020
Acromegaly Community’s Acromegaly Patient-Focused Drug Development Meeting
Acromegaly Community Patient-Focused Drug Development Meeting April 28th, 2020 This Patient-Focused Drug Development meeting is designed as a convergence of critical FDA officials, acromegaly patients, pharmaceutical companies, and other relevant stakeholders for an important day of conversation about the future of acromegaly treatment. This event will primarily feature patient testimony through panels and audience feedback related to the day to day challenges of living with this rare disease, as well as the goals that a future therapy for acromegaly should…
Find out more »October 2022
World Alliance of Pituitary Organizations’ Webinar: Protocol for Acromegaly Patient Care
Online Webinar: Protocol for Acromegaly Patient Care With Deanna Badiuk, Speaker October 7, 2022 After being diagnosed in 2008 with Acromegaly and realizing there was no support group in Western Canada, I decided to start a support group for acromegaly patients. The support group is based out of Vancouver, British Columbia, Canada and services most of Western Canada and maintains close relations with organizations within Canada and across North America and Europe. My focus is to support people with acromegaly…
Find out more »
