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February 2018
Amyloidosis Foundation Webinar: Cardiac Amyloid
Save the date for this Amyloidosis Webinar! Attend this virtual event to find out about cardiac amyloidosis, specifically wild type transthyretin cardiac amyloidosis (ATTRwt). Mathew S. Maurer, MD, the Arnold and Arlene Goldstein Professor of Cardiology and Professor of Medicine at Columbia University Medical Center, will personally answer any questions you might have at the end of this presentation.
Find out more »October 2018
The Amyloidosis Foundation’s Annual Run For Your Life 5K/10K
$35
The 2nd Annual Run For Your Life 5K/10K Patient Worthy is delighted to be a platinum sponsor of this exciting fundraiser for the Amyloidosis Foundation. This Halloween themed event will feature handsome rewards for the race winners and for participants with the best Halloween costumes. Enjoy food and drink which will be provided after the races. Proceeds will go towards amyloidosis research and programs to help patients and their families. Register early to guarantee a t-shirt and participation medal. Learn…
Find out more »November 2018
GlobalData’s Orphan Drugs: A Review of Key Development Opportunities Webinar
The Orphan Drugs: A Review of Key Development Opportunities Webinar Interested in learning the latest about orphan, rare disease drug development? Well this is your opportunity. The orphan drug field has been getting more crowded as of late and shows no signs of slowing down. This presentation will feature presentations from GlobalData's Journalist Team. This webinar will focus on drug development for transthyretin amyloidosis (TTR), mucopolysaccharidosis (MPS), and atypical hemolytic uremic syndrome (aHUS). Registration for this event is FREE.
Find out more »March 2024
Amyloidosis Foundation’s 2024 Light the Night for Amyloidosis Month
2024 Light the Night for Amyloidosis Month March 1-31, 2024 "Light the Night for Amyloidosis" is an awareness campaign created to draw attention to amyloidosis symptoms, diagnosis, treatment, and hopefully a cure! Since 'Amyloidosis Awareness Month' occurs in March, we are asking everyone to light up their porch/entryway with red bulbs in March. We have also contacted many US landmarks and businesses to do the same in March 2023. Below is a list of the approved requests, along with the date…
Find out more »Amyloidosis Foundation’s 2nd Annual Bradley Z. Naifeh Amyloidosis Conference
2nd Annual Bradley Z. Naifeh Amyloidosis Conference March 2, 2024 Houston, TX Presented by the Bradley Z. Naifeh Amyloidosis Clinical Research and Treatment Program at Houston Methodist J.C. Walter Jr. Transplant Center. Amyloidosis is an underrecognized condition because it has historically been misconceived to be a rare disease and presents in a myriad of clinical situations in a subtle manner. Recent advances in therapeutics have made it imperative that this condition is recognized and categorized appropriately in a timely manner…
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