- Rare Disease News
Family Conference 2018 This conference will be an opportunity for BBS and LM families to meet and network with one another. Attendees will also be able to learn about the latest updates in treatment development and research from renowned BBS and LM experts. Parents will also have the chance to consult with medical professionals about their most immediate concerns regarding day to day management of Bardet-Bield and Laurence-Moon syndromes. Registration is free for: Individuals who have BBS 17yrs + Under…
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