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October 2021
The BHD Foundation’s BHD Virtual Symposium
The BHD Virtual Symposium October 21-22, 2021 We would be absolutely delighted to welcome patients and families to both the clinical/research sessions as well as the patient-focused sessions. Please make sure you register for each of the events you wish to attend to ensure you receive the correct zoom link. Find more about the symposium and view the programme here. Register for the BHD clinical/research sessions here. Register for the BHD patient-focused sessions below: The Future of BHD Part 1…
Find out more »February 2023
BHD Foundation and Myrovlytis Trust’s Meet the Experts: Lung Online Webinar
Meet the Experts: Lung February 1, 2023 We are delighted to announce Professor Lisa Henske will be our next expert discussing her work on BHD and lung cysts. Lisa is a medical oncologist at the Brigham and Women’s Hospital and Dana-Farber Cancer Institute and Professor of Medicine at Harvard Medical School. She provides clinical care for individuals with kidney and lung manifestations of BHD and is the Director of the Center for LAM Research and Clinical Care. Her research laboratory…
Find out more »May 2024
The BHD Foundation’s BHD Community Virtual Symposium 2024
The BHD Foundation's BHD Community Symposium 2024 October 12, 2024 This year's symposium is focussed on the patient community. The agenda is being set by the patients following feedback from a patient survey. Patients and family members will be able to learn more about BHD from clinicians and patients who have lived experience. We will be providing an update on currently funded research by the Myrovlytis Trust direct from the researchers. Patients and family members will also have the opportunity…
Find out more »June 2024
The BHD Foundation’s Meet the Expert World Pneumothorax Day Webinar
The BHD Foundation's Meet the Expert World Pneumothorax Day Webinar June 24, 2024 Join us on World Pneumothorax Day for a special Meet the Expert event! We will be joined by Professor Stefan Marciniak of Cambridge University and Professor Simon Johnson of Nottingham University who will be talking about the latest information about BHD and pneumothorax. Includes a Q&A session where you can ask the experts! To sign up, click here.
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