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February 2019

Webinar: CIDP Patient Speaker Program

February 13, 2019 @ 7:00 pm - 8:00 pm

Speakers: Estelle Helms Carla Duff ARNP, CPNP-PC, MSN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI Acknowledgment: This event post is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare community.

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Webinar: CIDP Patient Speaker Program

February 20, 2019 @ 7:00 pm - 8:00 pm

Speakers: Elizabeth Thirtyacre Carla Duff ARNP, CPNP-PC, MSN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI Acknowledgment: This event post is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare community.

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Webinar: CIDP Patient Speaker Program

February 27, 2019 @ 7:00 pm - 8:00 pm

Speakers: Stephanie Stencil Laura Rohe RN, BSN, AE-C To register for this webinar, click here. To read more about Webinar Wednesdays, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI Acknowledgment: This event post is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare community.

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March 2019

Webinar: CIDP Patient Speaker Program

March 6, 2019 @ 7:00 pm - 8:00 pm

Speakers: Elizabeth Thirtyacre Carla Duff ARNP, CPNP-PC, MSN To register for this webinar, click here. To read more about Webinar Wednesdays, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI Acknowledgment: This event post is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare community.

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GBS/CIDP Foundation International’s Princeton One-Day Regional Conference

March 9, 2019 @ 9:00 am - 4:00 pm
Princeton Marriott at Forrestal, 100 College Road East
Princeton, NJ 08540 United States
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$40

The 2019 Princeton One-Day Regional Conference Don't miss this one day conference for GBS and CIDP patients. Attendees will learn the latest about disease treatment and research as well as build community and support with other GBS and CIDP patients. Registration: $40

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Webinar: CIDP Patient Speaker Program

March 13, 2019 @ 7:00 pm - 8:00 pm
Remote, From the Comfort of Your Own Home + Google Map

Speakers: Laura Rohe, RN, BSN, AE-C To register for this webinar, click here. To read more about Webinar Wednesdays, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI Acknowledgment: This event is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare community.

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Jackson, MS Live Event: CIDP Patient Speaker Program

March 18, 2019 @ 6:00 pm - 8:00 pm
Char, 4500 Interstate 55 North Frontage Road
Jackson, MS 39211 United States
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Speakers: Danielle Ball Laura Rohe RN, BSN, AE-C To register for this live event, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant,…

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Edison, NJ Live Event: CIDP Patient Speaker Program

March 19, 2019 @ 7:00 pm - 9:00 pm
Seasons 52, Edison-Menlo Park Mall
Edison, NJ 08837 United States
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Speakers: Carla Duff, ARNP, CPNP-PC, MSN Elizabeth Thirtyacre To register for this live event, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant,…

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Princeton, NJ Live Event: CIDP Patient Speaker Program

March 26, 2019 @ 7:00 pm - 9:00 pm
Seasons 52 – Princeton, 3535 US Highway 1
Princeton, NJ 08540 United States
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Speakers: William Blouin, MSN, ARNP, CPNP Elizabeth Thirtyacre To register for this live event, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant,…

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Jacksonville, FL Live Event: CIDP Patient Speaker Program

March 26, 2019 @ 7:00 pm - 9:00 pm
Moxie Kitchen, 4972 Big Island Drive
Jacksonville, FL 32246 United States
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Speakers: Carla Duff ARNP, CPNP-PC, MSN Appolos Laurore To register for this live event, click here.    Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with a PW collaborator, click here and to register, click here. Acknowledgment: This event is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing…

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Birmingham, AL Live Event: CIDP Patient Speaker Program

March 28, 2019 @ 6:00 pm - 8:00 pm
Gianmarco’s Restaurant, 721 Broadway Street
Birmingham, AL 35209 United States
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Speakers: Estelle Helms Laura Rohe RN, BSN, AE-C To register for this live event, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant,…

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Albany, NY Live Event: CIDP Patient Speaker Program

March 28, 2019 @ 6:30 pm - 8:30 pm
Provence, 1475 Western Avenue
Albany, NY 12203 United States
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Speakers: William Blouin, MSN, ARNP, CPNP Appolos Laurore To register for this live event, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant,…

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April 2019

The GBS/CIDP Foundation International’s Colorado Springs One-Day Regional Conference

April 6, 2019 @ 9:00 am - 4:00 pm
Doubletree Colorado Springs, 1775 E Cheyenne Mountain Blvd
Colorado Springs, CO 80906 United States
+ Google Map
$40

The 2019 Colorado Springs One-Day Regional Conference Are you a GBS or CIDP patient? Then don’t miss this one day patient conference. At this event, GBS and CIDP patients and their families will have the opportunity to learn from disease experts about the latest in disease research and treatment. Meet and share your experiences with other members of the GBS and CIDP patient community. Registration: $40

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Phoenix, AZ Live Event: CIDP Patient Speaker Program

April 6, 2019 @ 4:00 pm - 5:00 pm
Seasons 52- Phoenix, 250 East Camelback Road
Phoenix, AZ United States
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Speakers: Laura Rohe, RN Dani Ball To register for this live event, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant,…

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Louisville, KY Live Event: CIDP Patient Speaker Program

April 9, 2019 @ 6:00 pm - 7:00 pm
Napa River Grill, 1211 Herr Lane
Louisville, KY United States
+ Google Map

Speakers: Laura Rohe, RN Elizabeth Thirtyacre To register for this live event, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event is post sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant,…

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Houston, TX Live Event: CIDP Patient Speaker Program

April 10, 2019 @ 7:00 pm - 8:00 pm
Seasons 52- Houston, 842 West Sam Houston Parkway
Houston, TX 77024 United States
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Speakers: Carla Mendoza, RN Elizabeth Thirtyacre To register for this live event, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing…

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Clayton, MO Live Event: CIDP Patient Program

April 10, 2019 @ 7:00 pm - 8:00 pm
Cafe Napoli, 7754 Forsyth Boulevard
Clayton, MO 63105 United States
+ Google Map

Speakers: Laura Rohe, RN Appolos Laurore To register for this live event, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted…

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Minneapolis, MN Live Event: CIDP Patient Speaker Program

April 16, 2019 @ 6:30 pm - 7:30 pm
Stella’s Fish Cage & Prestiage Oyster Bar, 1400 West Lake Street
Minneapolis, MN 55408 United States
+ Google Map

Speakers: Laura Rohe, RN Appolos Laurore To register for this live event, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant,…

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New Haven, CT Live Event: CIDP Patient Speaker Program

April 17, 2019 @ 6:30 pm - 7:30 pm
Tre Scalini Ristorante, 100 Wooster Street
New Haven, CT 06511 United States
+ Google Map

Speakers:William Blouin, ARNP Appolos Laurore To register for this live event, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and…

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Webinar: CIDP Patient Speaker Program

April 19, 2019 @ 7:00 pm - 8:00 pm

Speakers: William Blouin MSN, ARNP, CPNP Estelle Helms To register for this webinar, click here. To read more about Webinar Wednesdays, click here.  Important Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI Acknowledgment: This event post is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare community.

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Webinar: CIDP Patient Speaker Program

April 24, 2019 @ 7:00 pm - 8:00 pm

Speakers: Lisa Mandolfo MSN, RN Stephanie Stencil To register for this webinar, click here. To read more about Webinar Wednesdays, click here.    Acknowledgment: This event post is sponsored by CSL Behring and is promoted through Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Costa Mesa, CA Live Event: CIDP Patient Speaker Program

April 25, 2019 @ 6:00 pm - 7:00 pm
Seasons 52- Costa Mesa, 3333 Bristol Street Suite 2802
Costa Mesa, CA 92626 United States
+ Google Map

Speakers: Laura Rohe, RN Elizabeth Thirtyacre To register for this live event, click here.  For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here.   Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Charlotte, NC Live Event: CIDP Patient Speaker Program

April 30, 2019 @ 6:00 pm - 7:00 pm
Corkbuzz Restaurant, 4905 Ashley Park Lane, Suite J
Charlotte, NC 28210 United States
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Speakers: Lisa M. Mandolfo, RN Elizabeth Thirtyacre To register for this live event, click here.  For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here.   Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Clermont, FL Live Event: CIDP Patient Speaker Program

April 30, 2019 @ 7:00 pm - 8:00 pm
Lilly’s on the Lake, 846 West Osceola Street
Clermont, FL 34711 United States
+ Google Map

Speakers: Carla Duff, ANP Appolos Laurore To register for this live event, click here.  For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here.   Acknowledgment: This event post is sponsored by CSL Behring and is promoted through Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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May 2019

Leawood, KS Live Event: CIDP Patient Speaker Program

May 6, 2019 @ 6:00 pm - 7:00 pm
Bristol Seafood Grill, 5400 West 119th Street
Leawood, KS 66209 United States
+ Google Map

Speakers: Laura Rohe RN, BSN, AE-C Elizabeth Thirtyacre To register for this live event, click here.    For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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