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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

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Upcoming Events › Complex Regional Pain Syndrome

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Catalyst’s LEMS Aware Podcast Helps Connect Patients

A Journey to Self-Advocacy and Community Connection with CTCL Skin Symptoms

Make a difference, share your experiences and get paid. Opt-in & join Patient Worthy’s panel for paid opportunities such as Surveys, Market Research, Patient Advisory Panels & much more.

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

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