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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

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Upcoming Events › Complex Regional Pain Syndrome

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Lila’s Journey: Staying Positive While Living With Pediatric Low-Grade Glioma (pLGG)

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

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