- Rare Disease News
Events Search and Views Navigation
June 2018
Parent Project Muscular Dystrophy’s Annual Conference
$150
This is the largest international conference dedicated to Duchenne muscular dystrophy in the world. Families affected by Duchenne muscular dystrophy will gather to share stories, network, and build community. In addition, attendees will get to learn about the latest research and treatment news. Registration Family rates: $150/$200/$250 (Early/Regular/Late) Professional/Industry rates Industry sponsor reps: $550/$600/$660 (Early/Regular/Late) Non-sponsor industry reps: $750/$800/$860 Academic/medical professionals: $325/$350/$425 Early registration: 3/22-4/22 Regular registration: 4/23-5/23 Late registration: 5/24-6/24
Find out more »June 2019
Parent Project Muscular Dystrophy’s 2019 Annual Conference
$200
The 2019 Annual Conference This will be the 25th year of PPMD's annual conference, which is geared towards Duchenne muscular dystrophy patients, their families, researchers, caregivers, and physicians. Don't miss this opportunity to join a closely knit community of patients and learn critical information about the latest research, therapies, and care methods. Sessions will be held on a variety of essential topics that are relevant to the Duchenne muscular dystrophy community. For registration information, click here.
Find out more »January 2020
CureDuchenne Cares Session: Riverside, CA
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families January 11th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as caregivers. These casual, two hour events can help inform patients about the latest in standards of care and other important information related to Duchenne muscular dystrophy. These events are completely free to members of the Duchenne community. Register here.
Find out more »February 2020
CureDuchenne Cares Session: Salt Lake City, UT
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families February 1st, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as caregivers. These casual, two hour events can help inform patients about the latest in standards of care and other important information related to Duchenne muscular dystrophy. These events are completely free to members of the Duchenne community. Register here.
Find out more »CureDuchenne Cares Workshop: Houston, TX
CureDuchenne Cares Workshops: Hear The Latest From Experts February 8th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular dystrophy patient families. These workshops are facilitated by disease experts and clinicians that can inform attendees about a variety of subjects, such as clinical trial updates and the latest standards of care. To register for this event, click here.
Find out more »CureDuchenne Professional Course: Houston, TX
$130
A Professional Course for Healthcare Providers This course has been verified by the Texas PT for 6.5 CCUs. The professional course is a valuable opportunity for caregivers and healthcare providers to get informed on the most up to date standards of care for Duchenne muscular dystrophy. The course will include a variety of objectives, such as: Demonstrate a depth of Duchenne knowledge Identify the stages of the disease Adapt therapy treatments to suit a patient's needs Develop thorough care plans…
Find out more »CureDuchenne Cares Session: Charleston, SC
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families February 22nd, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as caregivers. These casual, two hour events can help inform patients about the latest in standards of care and other important information related to Duchenne muscular dystrophy. These events are completely free to members of the Duchenne community. Register here.
Find out more »March 2020
CureDuchenne Cares Session: Knoxville, TN
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families March 7th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as caregivers. These casual, two hour events can help inform patients about the latest in standards of care and other important information related to Duchenne muscular dystrophy. These events are completely free to members of the Duchenne community. Register here.
Find out more »CureDuchenne Cares Workshop: Phoenix, AZ
CureDuchenne Cares Workshops: Hear The Latest From Experts March 14th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular dystrophy patient families. These workshops are facilitated by disease experts and clinicians that can inform attendees about a variety of subjects, such as clinical trial updates and the latest standards of care. To register for this event, click here.
Find out more »CureDuchenne Professional Course: Billings, MT
$130
A Professional Course for Healthcare Providers This course meets all Montana Board of PT requirements for 6.5 CE hours and is approved by the Montana Board of OT Practice. The professional course is a valuable opportunity for caregivers and healthcare providers to get informed on the most up to date standards of care for Duchenne muscular dystrophy. The course will include a variety of objectives, such as: Demonstrate a depth of Duchenne knowledge Identify the stages of the disease Adapt…
Find out more »CureDuchenne Cares Session: Billings, MT
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families March 21st, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as caregivers. These casual, two hour events can help inform patients about the latest in standards of care and other important information related to Duchenne muscular dystrophy. These events are completely free to members of the Duchenne community. Register here.
Find out more »CureDuchenne Cares Sessions: Boston, MA
CureDuchenne's Cares Sessions: Helping Connect and Inform Patient Families March 28th, 2020, 6:30 pm The Sessions program from CureDuchenne is geared specifically towards patients and their families as well as caregivers. These casual, two hour events can help inform patients about the latest in standards of care and other important information related to Duchenne muscular dystrophy. These events are completely free to members of the Duchenne community. Register here.
Find out more »April 2020
CureDuchenne Cares Workshop: Sacramento, CA
CureDuchenne Cares Workshops: Hear The Latest From Experts April 4th, 2020, 8:00 am The Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular dystrophy patient families. These workshops are facilitated by disease experts and clinicians that can inform attendees about a variety of subjects, such as clinical trial updates and the latest standards of care. To register for this event, click here.
Find out more »