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April 2018

The National Tay-Sachs & Allied Diseases Association’s 2018 Annual Family Conference

April 12, 2018 - April 15, 2018
Hyatt Regency Riverfront, 225 E. Coastline Dr.
Jacksonville, FL United States
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$320

Presenting the 40th Annual Family Conference Join NTSAD for three days of education, support, and empowerment for Tay-Sachs, Sandhoff, Canavan, and GM1 patients and their families. Adult: $320 (ages 13 and up) Child: $150 (ages 3-12) Affected kids are eligible to attend free of charge.

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September 2019

The Cure GM1 Foundation’s GM1 Family Meeting

September 20, 2019 @ 8:00 am - September 21, 2019 @ 5:00 pm
Holiday Inn Bayside, 4875 N Harbor Dr
San Diego, CA 92106 United States
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The GM1 Family Meeting September 20th, 2019 San Diego, CA This GM1 Family Meeting is intended for all GM1 patients and their families. Don't miss this opportunity to learn about the latest research, advocate with fellow patients, and build community. The event will also be taking place near the same time and place as the Global Genes Rare Patient Advocacy Summit. To register for the FREE GM1 Family Meeting, click here.

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