Classical HCU Parent-Caregiver Online Meetup March 19, 2022 at 10 AM Online meet-ups are an opportunity to connect parents & caregivers impacted by classical homocystinuria to with each other. Whether your child is 5 months old or 25 years old, parents, grandparents, and caregivers of those with HCU need support! Come join us for networking, tips, tricks, and conversation. To sign up, click here.

Classical HCU Patient Panel Conversation: The Back to Care Journey Online Event April 2, 2022 at 12:00 PM The journey looks different for each Classical HCU patient. Join us for a conversation with 5 Classical HCU patients about their experience. We know it’s easy to stray away, but as patients age, they realize the importance of keeping in contact with their clinic, following their diet, and keeping themselves all around healthy! Join our patient-moderator Danae, and patients Valerie, Janet, Ashley…

Spring Low Protein Cooking Class Online April 23, 2022 at 2:00 PM Join HCU Network America and Chef Amber as she demonstrates for us 3 quick and easy low protein dishes! All low protein patients welcome! Click here to sign up for FREE

Cobalamin Disorders with Homocystinuria April 24, 2022 at 3:00 PM Come join us for our Cobalamin disorders with Homocystinuria virtual educational program. To sign up, click here.

Classical HCU Parent-Caregiver Online Meetup May 21, 2022 at 10 AM Online meet-ups are an opportunity to connect parents & caregivers impacted by classical homocystinuria to with each other. Whether your child is 5 months old or 25 years old, parents, grandparents, and caregivers of those with HCU need support! Come join us for networking, tips, tricks, and conversation. To sign up, click here.

Classical HCU Parent-Caregiver Online Meetup August 20, 2022 at 10 AM Online meet-ups are an opportunity to connect parents & caregivers impacted by classical homocystinuria to with each other. Whether your child is 5 months old or 25 years old, parents, grandparents, and caregivers of those with HCU need support! Come join us for networking, tips, tricks, and conversation. To sign up, click here.

Classical HCU Virtual Meet-Up August 21, 2022 Meetups are an opportunity to connect patients and caregivers impacted by Classical Homocystinuria to one another virtually. About this event Struggling with the diet and formula? Feeling like you are in a food rut, don’t like your formula, or you are having trouble getting it covered? Having health issues, you aren’t sure are HCU related, or just part of being an adult? Come join us for our Classical HCU Community Meetup. Click here…

HCU Heroes Race for Research September 1-30, 2022 Set with the participants convenience, geography and their pace in mind, in 2019 our first race launched with just 14 participants and raising just over $4,000. Since then our HCU Race for Research has raised over $45,000 for homocystinuria research and last year had 147 participants! These races are convenient, fun and competitive way to support the efforts of HCU Network America (HCUNA). We sincerely appreciate your support for this event and…

Classical HCU Parent-Caregiver Online Meetup October 8, 2022 at 10 AM Online meet-ups are an opportunity to connect parents & caregivers impacted by classical homocystinuria to with each other. Whether your child is 5 months old or 25 years old, parents, grandparents, and caregivers of those with HCU need support! Come join us for networking, tips, tricks, and conversation. To sign up, click here.

Classical HCU Virtual Meet-Up October 9, 2022 Meetups are an opportunity to connect patients and caregivers impacted by Classical Homocystinuria to one another virtually. About this event Struggling with the diet and formula? Feeling like you are in a food rut, don’t like your formula, or you are having trouble getting it covered? Having health issues, you aren’t sure are HCU related, or just part of being an adult? Come join us for our Classical HCU Community Meetup. Click here…

Rare X HCU Data Collection Program Facebook Live Chat: Oral Health Survey Webinar November 17, 2022 From short roots to crowding of teeth, patients with various types of homocystinuria experience a wide range of oral issues. While some of these dental issues are better documented, other aspects aren't. Come join two adults with classical HCU, Danae' and Brooklyn, along with parent of a little boy with Cobalamin G, Ashlee as we dive into their experiences managing the oral health issues…

Spring Low Protein Cooking Class Online April 1, 2023 at 2:00 PM Join HCU Network America and Chef Amber as she demonstrates for us 3 quick and easy low protein dishes! All low protein patients welcome! Click here to sign up for FREE.