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June 2018
Soft Bones’ International HPP Meeting
2018 International HPP Meeting This is an invitation only event open to physicians, scientists, and researchers. The Soft Bones Scientific Advisory Board will be responsible for sending invitations and determining the agenda.
Find out more »July 2019
Soft Bones’ La Jolla, California Patient Meeting
2019 Soft Bones Patient Meeting La Jolla, California Are you a hypophosphatasia patient? Well don’t miss this important patient event. At this conference, hypophosphatasia patients and their families will have the opportunity to learn the latest about clinical care and treatment options for hypophosphotasia as well as hear about the latest research initiatives.
Find out more »The MAGIC Foundation’s 25th Annual Convention
The MAGIC Foundation's 25th Annual Convention 2019 This comprehensive educational program will be an opportunity for patients, their families, and caregivers to learn the latest information about a variety of endocrine disorders that affect patients of all ages. Disorders to be covered at the event include growth hormone deficiency, congenital adrenal hyperplasia, Russell-Silver syndrome, precocious puberty, hypophosphatasia, panhypopituitarism, McCune-Albright syndrome, and optic nerve hypoplasia. More information about this event will be coming soon. Click here to learn more.
Find out more »October 2019
Soft Bones’ Parsippany, New Jersey Patient Meeting
2019 Soft Bones Patient Meeting Parsippany, New Jersey Are you a hypophosphatasia patient? Well don’t miss this important patient event. At this conference, hypophosphatasia patients and their families will have the opportunity to learn the latest about clinical care and treatment options for hypophosphotasia as well as hear about the latest research initiatives.
Find out more »April 2020
Alexion Pharmaceuticals’ Stand with HPP Live Webinar
Stand With HPP Live Webinar April 16th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP). Ask questions & gather information to discuss with your doctor. To register for this webinar, click here. Acknowledgment: This event post is sponsored by Alexion Pharmaceuticals and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.
Find out more »May 2020
Alexion Pharmaceuticals’ Stand with HPP Live Webinar
Stand With HPP Live Webinar May 6th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP). Ask questions & gather information to discuss with your doctor. To register for this webinar, click here. Acknowledgment: This event post is sponsored by Alexion Pharmaceuticals and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.
Find out more »Alexion Pharmaceuticals’ Stand with HPP Live Webinar
Stand With HPP Live Webinar May 28th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP). Ask questions & gather information to discuss with your doctor. To register for this webinar, click here. Acknowledgment: This event post is sponsored by Alexion Pharmaceuticals and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.
Find out more »June 2020
Alexion Pharmaceuticals’ Stand with HPP Live Webinar
Stand With HPP Live Webinar June 9th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP). Ask questions & gather information to discuss with your doctor. To register for this webinar, click here. Acknowledgment: This event post is sponsored by Alexion Pharmaceuticals and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.
Find out more »October 2020
Alexion Pharmaceuticals’ Unmask HPP Webinar Educational Event
Unmask HPP Webinar Educational Event October 13th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option. Ask questions & gather information to discuss with your doctor. To register for this Webinar Educational Event, click here. Alexion is a trademark of Alexion Pharmaceuticals, Inc. Alexion is registered with the United States Patent & Trademark Office, as well as in other countries. Copyright © 2020, Alexion Pharmaceuticals,…
Find out more »Alexion Pharmaceuticals’ Unmask HPP Webinar Educational Event
Unmask HPP Webinar Educational Event October 22nd, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option. Ask questions & gather information to discuss with your doctor. To register for this Webinar Educational Event, click here. Alexion is a trademark of Alexion Pharmaceuticals, Inc. Alexion is registered with the United States Patent & Trademark Office, as well as in other countries. Copyright © 2020, Alexion Pharmaceuticals,…
Find out more »Alexion Pharmaceuticals’ Unmask HPP Webinar Educational Event
Unmask HPP Webinar Educational Event October 28th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option. Ask questions & gather information to discuss with your doctor. To register for this Webinar Educational Event, click here. Alexion is a trademark of Alexion Pharmaceuticals, Inc. Alexion is registered with the United States Patent & Trademark Office, as well as in other countries. Copyright © 2020, Alexion Pharmaceuticals,…
Find out more »November 2020
Alexion Pharmaceuticals’ Unmask HPP Webinar Educational Event
Unmask HPP Webinar Educational Event November 5th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option. Ask questions & gather information to discuss with your doctor. To register for this Webinar Educational Event, click here. Alexion is a trademark of Alexion Pharmaceuticals, Inc. Alexion is registered with the United States Patent & Trademark Office, as well as in other countries. Copyright © 2020, Alexion Pharmaceuticals,…
Find out more »Alexion Pharmaceuticals’ Unmask HPP Webinar Educational Event
Unmask HPP Webinar Educational Event November 18th, 2020 at 6pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option. Ask questions & gather information to discuss with your doctor. To register for this Webinar Educational Event, click here. Alexion is a trademark of Alexion Pharmaceuticals, Inc. Alexion is registered with the United States Patent & Trademark Office, as well as in other countries. Copyright © 2020, Alexion Pharmaceuticals,…
Find out more »December 2020
Alexion Pharmaceuticals’ Unmask HPP Webinar Educational Event
Unmask HPP Webinar Educational Event December 1st, 2020 at 6:30 pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option. Ask questions & gather information to discuss with your doctor. To register for this Webinar Educational Event, click here. Alexion is a trademark of Alexion Pharmaceuticals, Inc. Alexion is registered with the United States Patent & Trademark Office, as well as in other countries. Copyright © 2020, Alexion…
Find out more »Alexion Pharmaceuticals’ Unmask HPP Webinar Educational Event
Unmask HPP Webinar Educational Event December 7th, 2020 at 6:00 pm ET Listen to a physician and a patient or caregiver discuss topics about hypophosphatasia (HPP) and a possible treatment option. Ask questions & gather information to discuss with your doctor. To register for this Webinar Educational Event, click here. Alexion is a trademark of Alexion Pharmaceuticals, Inc. Alexion is registered with the United States Patent & Trademark Office, as well as in other countries. Copyright © 2020, Alexion…
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